Avery Canahuati was born with Spinal Muscular Atrophy Type One (SMA). This disease is an incurable genetic defect that attacks the muscles. One in 6,000 babies are born with one of the four types of SMA, and one in forty people are carriers of the gene. Avery is not expected to live past the age of two because of this disease. Her parents, Mike and Laura Canahuati, started a blog to update their family of Avery’s condition. The blog is written in baby Avery’s perspective and contains a bucket list of tasks to accomplish that go well past her teenage years. The blog has gained popularity and many people help support the parents through it.
http://www.cnn.com/2012/04/28/us/texas-baby-bucket-list/index.html?hpt=he_c2
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